In this guide:
Multiple sclerosis (MS) is a chronic neurological disease that affects the central nervous system. It is unlikely that two people with MS will experience symptoms in the same way, and symptoms can often evolve, appear unexpectedly, or come and go. That's why it's important to find support services that are specifically tailored to you or your loved one.
How does MS impact individuals?
In people with MS, the immune system mistakenly attacks the protective coating around nerves in the brain and spinal cord. This process, called demyelination, causes the nerves to become scarred. These scars disrupt the brain's ability to send messages to the body properly, leading to a wide range of symptoms.
According to MS Plus, common symptoms include:
- Changes in memory and cognition
- Sensory changes and pain Bladder and bowel function issues
- Reduced strength or mobility
- Fatigue (both physical and mental).
Why support matters
The impact of MS varies from person to person, and support needs can vary just as much. Some people may only need help around the house, while others might benefit from a range of allied health therapies. Having the right support in place can make a meaningful difference.
Many people with MS may be eligible for funding through the National Disability Insurance Scheme (NDIS). The NDIS can help cover the cost of therapies, equipment and services that support independence and wellbeing.
You can find independent support workers on Mable and pay privately even if you're not eligible for the NDIS.
How can independent support workers on Mable help an adult with MS?
Independent support workers on Mable can help support a person's health and wellbeing, and promote independence, based on their individual needs.
Types of support might include:
- Allied health services, such as physiotherapy, psychology and continence support.
- Personal care, including dressing, showering and grooming
- Household tasks like cleaning, grocery shopping and meal preparation.
- Transport to and from medical appointments or work.
- Extra care and monitoring during periods of relapse.
- Medication support or nursing services.
- Respite for family members or regular carers.
- Transition to independent living, including help with finding suitable accommodation, applications and interviews.
- Aged care support for older people with MS.
According to MS Australia, most carers provide emotional support every day - not just physical help. Mable helps connect people with independent support workers who offer care and compassion, as well as physical support.
Learn more about the types of support available through Mable.
How can Mable support workers help a child with MS?
While MS in children is less common, around 10% of people with MS experience their first symptoms or receive a diagnosis during childhood.
Independent support workers on Mable can assist children and their families by offering:
- Emotional and psychological support to manage anxiety, mood or behavioural changes.
- Allied health services, including physiotherapy and speech therapy, especially after relapses.
- Play-based support to encourage movement and physical activity.
- Assistance with health check-ups, such as eyesight or hearing tests.
- Educational activities like puzzles and learning games to support cognitive development.
- Daily routine support, including help with getting ready, mealtimes, transport and sleep.
- Respite care to give family members a break.
- Encouragement in building independence and participating socially.
Why is it important to build a support team?
Having a reliable team of support workers can make a big difference to someone's wellbeing. Relying on one support worker alone can have its challenges, such as when they're sick, on holidays, or not trained in every area of care. A team approach means more flexibility and a broader range of support skills, which is especially important as a person's needs change over time.
Once you've considered what kind of support you're looking for, building a support team on Mable is simple.
Check out our tips for building a great support team.
Accessing MS assistance and support services
The right support can help a person living with MS live a fulfilling, confident and independent life. Start building your support team on Mable today to access reliable support worker services for MS.
People with multiple sclerosis, loved ones and carers can find more resources and support through MS Australia, or associations and support groups in different States and Territories. MS Plus also offers assistance with understanding and applying for the NDIS.
The information provided in this article is general information only and based on current information at the date of publication. In addition to considering the information shared in this article, Mable encourages you to conduct your own research and seek independent advice relative to your circumstances. If you wish to use your NDIS funding on any of the services outlined above, Mable recommends that you check your NDIS Support Plan or speak with your Plan Manager to ensure that the appropriate services are coverable.
